they mean well BUT

topic posted Tue, December 28, 2004 - 8:27 PM by  SECTUR 70
what is your experience with family/co-workers that apparently in their mind know more about diabetes than you (assuming your a diabetic) do?

My family/co-workers have NO medical expertese and are not daibetics(Mother is borderline) ...I know they mean well but they annoy me to no end.
eg
I drink about 1/4 glass of orange juice and in some cases have done half a glass and mixed it with water..and I get read the riot act. Also my doctor has pretty much said that as long as I do it in moderation and follow my diet indulging every now and then is ok as my tests havbe always come back fine. I only have to see him every 6 months.
Lord help me if I have one chocolate chip cookie cuz my co workers will try to smack it out of my hand.
I have even brought a copy of my diet in for them to see where it cleearly states I am allowed to have like 4 small chocolate chip cookies or 1/2 cup of Oj etc...they don't seem to care. I have had to put my foot down and tell em to mind their own business on a few occasions but it does no good.
On the other side of that , anytime we have a party (been there for 4 years now) no one ever brings any diet pop or any kind of healthy snack. It's always something that I can either have very little of or not touch at all.(reg pop is one thing I MUST steer clear of as it makes my glucose skyrocket). If I even try to get a pinch I get chastised. When parties come around I am always asked to make a cheesecake(not sugar free either by the way) So much for meaning well, guess they are just selfish and controlling LOL
posted by:
SECTUR 70
Chicago
  • Unsu...
     

    Re: they mean well BUT

    Thu, December 30, 2004 - 10:40 AM
    I feel ya! I get that at work too but only from a few annoying coworkers. OMG! I feel like saying, "you are not my mom; even if you were, it is MY damn life. I am following my diet so shut up."

    I expect this one chick at work to say it EVERY time there is sweets around. Sure enough, she does do this especially at parties or holiday gatherings. People that don't understand the disease needs to read and educate themselves before they start telling people how to eat and manage another person's diabetes.
    Luckily I only see these few annoying co-workers every once in a while. UGH! They DO make me feel like I am "cheating" when I am not. I have the pump and the pump allows me to eat the foods I originally could not eat.
    You are right. They are possibly controlling people because the chick at work that does it to me is VERY controlling. She use to be my boss.
    When I read your post, I felt the same exact way. Isn't it joyous! hahahaha!
    • Re: they mean well BUT

      Sun, January 2, 2005 - 10:59 PM
      glad to know im not the only one LOL
      and happy new year everybody :)

      speaking of which if they knew I had the champagne toast and those couple of white russians on new years eve the co workers would probably have a big ol hissy :-P
      • Unsu...
         

        Re: they mean well BUT

        Mon, January 3, 2005 - 6:31 AM
        LMAO!!!!!!!!!

        You said BIG OL HISSY!!! HAHAHAHA!! I LOVE IT! I THINK I WILL USE THAT SOME TIME TODAY...AND OFTEN. hahahaha! THAT CRACKS ME UP!
        YES! Speaking of drinking...man oh man, I never hear the end of it when I drink. Big ol hissy is right!
        • Re: they mean well BUT

          Tue, January 4, 2005 - 12:44 AM
          LOL yes Crazy I actually use that word a lot when i refer to them. I tell em they are too old to throw tantrums so one day I started telln em to stop having a hissy fit and been doing so ever since :-P
          • Unsu...
             

            Re: they mean well BUT

            Fri, January 7, 2005 - 11:27 AM
            HA!!! Ill give that a try too!
            • Re: they mean well BUT

              Sat, January 8, 2005 - 4:36 PM
              The level of ignorance running rampant about our affliction is sad. Then again I'm just as stoopid regarding other people's ills. The difference being that I rarely open my mouth and prove it to everyone in the room.
              That said, I generally try and enlight the person on the first go around under the assumption that they have my best interest in mind. If it goes to a third round public belittlement is required. :^)
  • Re: they mean well BUT

    Thu, January 26, 2006 - 2:06 PM
    I say cheers to you. If people cared as much as they say, then they would take the time to educate themselves. I think all of that concern is really 2 part concern, 2 parts know-it-all, and 6 parts nosy body.

    My coworkers get it but my family doesn't. I count my carbs so I can eat what I want as long as I take a booster shot. I've been doing this for years and I have really good control and they still won't shut up!

    I feel ya..
    • Re: they mean well BUT

      Sat, May 13, 2006 - 1:41 PM
      No news here. The first 1 year of having Type 1 I was much bothered and intimidated by the general public "knowing" what and what not I could eat, drink, do ... Well, I did not really know myself so much, huh. Ignorance goes more than one way.

      Then I started buying textbooks for physicians, and researched then "new" ways of conventionally treating Type 1 - I will never forget Kinga Howorka (THANK YOU, Milady!!) 's book about (translation): NIS: Normoglycemic Insulin Substitution. Positively changed lifes. Mine for sure. So I went against what my doc was saying (It did not work, while the "Basal/Bolus-Principle worked - as we all know now)

      So, still intimidated, I did not tell people about the diabetes. Then, sometime into this, I got my pump. I started EXPLAINING things to people. And with a good dose of GFY in the back of my mind to set against the well-meant assault of my fellow humans, I retreated to the position, that a) It is my Life. b) I know quite well what I am doing. c) Unless you are a specialist physician or nurse, I probably know a lot more about it. d) Test strips are expensive, but they are, together with Haemogloubin A1C and absense of complications, a good indication of that what I am doing is not totally crap. e) if you are NOT a speialist nurse or Physician, you may very well not know what you are saying about my Type1, because your patients are mostly Type 2 and you are not keeping up on research.

      Now it is 18 years after my first Insulin shot (in fact, exactly 18 years and 2 weeks today, hehe), and I am rather relaxed about these things. I believe it is mostly, because I am rather secure in my knowledge about diabetes, I gained some self-confidence, and I have accepted the fact that my body does not make insulin. And I have realized, that that fact does not stop me from doing anything I want to do. Sure, sometimes I need more preparation than others (i.e. stop by the store and buy glucose tabs on my way to climb that mountain, and perhaps bring a lot more food than my fellow alpinists (yup, I am very aware of "food"), but it is no big deal.

      To address the original issue - and why I wrote this long blurp about how great - I believe, that the public "caring" is hurtful, when you are a) not sure about what you are doing is right, b) you are still grieving about the loss of "health", and c) you need these others to agree with you to not make you feel alone/unhappy etc.

      My suggestion, dont try and change the public (7 billion people is too much), but work on the first three things that you can influence. Knowledge, Acceptance, Life's not a popularity contest (aka Love yourself). Then, educate the public, one conversation at a time. When you feel like it :)

      If someone give you the talk on how you are ruining your health with that chocolate chip cookie, you could meditate on that eating fried/bbq'ed food in combination with lack of exercise and alcohol consumption is not that healthy either (if you need to level the field first) ... oh well. Engage the person in a technical lecture about insulin substitution, food and so on (works ALL the time :) )

      Cheers, love, and happy thoughts!
      • Re: they mean well BUT

        Mon, April 2, 2007 - 7:17 AM
        Wow KATJA, where did you start on these text books? How old were you? I am just realizing that we are not out of the woods. When my daughter was diagnosed and sent to PICU I cried so much and then I saw the other families whose children wouldn't leave alive and all I could think was that my baby was coming home alive and we could figure this out. I felt that I had everything to be thankful for, but now, I am begining to see that she has a life full of hard stuff to deal with, the potential to lose feet, organ failure and deadly low bs's, etc. I am feeling a sense of urgency to make changes to help her avoid all that stuff and it is so overwhelming. Maybe looking in these text books is what I should do. I have no idea where to begin though, any advice?
        • Re: they mean well BUT

          Tue, April 3, 2007 - 8:48 AM
          The best way you can help her now is to teach her good habits early on and provide her a sounding board for her fears and frustrations. In the 70's I didnt have much of either (though I did go to camp and that kicked ass!) and it's made it more difficult for me now when all those price tags you mentioned really do come home to roost. The ounce of prevention cliche really does pay dividends in our case.
          • Re: they mean well BUT

            Tue, April 3, 2007 - 10:43 AM
            What up "G" (;0)... What kinds of things do you wish you would have been taught as a kid that would have helpedd you now? This is the stuff I am trying to figure out and I am so clueless. Thank you for your earlier response too.
            • Re: they mean well BUT

              Tue, April 3, 2007 - 11:27 AM
              You haven't said how old your daughter is - but make sure that she has as much control over her health care as possible. Still lay down the rules, but make sure she knows why she needs to do these things, and that she can do them by herself.

              Make sure you tell her that she's expected to rebel and fuck up as a teenager.

              I was diagnosed with type 1 diabetes when I was 9 and my doctors told me many times that the 'teen years' are difficult and everyone rebels by not keeping control and ignoring their illness.

              My response was to take better care of myself. What teenager wants to do what's expected of them? Make sure she has some other outlet to rebel through and be defiant about.
              • Re: they mean well BUT

                Thu, April 5, 2007 - 4:50 AM
                My daughter is 7 now. She was diagnosed just before she turned 6. She does make many of the choices about how we are going to handle things, within the parameters set by the endo. She does test on her own, draw up her pen shots, does air shots for the lantis. She does not want to give herself shots, she has tried it once. How do you safely rebel in your diabetes care? I hate to think of her back in the hospital or worse.
                • Re: they mean well BUT

                  Thu, April 5, 2007 - 9:48 AM
                  Hopefully she doesn't rebel at all with her care.

                  My point was that by being told that I was expected to rebel made me want to take better care of myself. Most people want to avoid becoming a cliche and hurting themselves in the process - but first they have to know that the cliche exists.

                  This is really a small point in the large picture, and it sounds like you're doing a good job of keeping up with what's going on and making sure she takes care of herself. People are very adaptable, especially when you start a routine at a young age.





  • Re: they mean well BUT

    Sat, March 31, 2007 - 7:25 PM
    Hi, I'm new to this tribe, my name is Michelle and one of my little girls is type1 diabetic. She was diagnosed about 1 1/2 years ago. She is on the insulin used for the pump but not mentally ready for a pump yet. Anyway, I was reading what you wrote about your diet and everything, and I was wondering if your insulin therapy allows for a change in the ammount of carbs you eat at meals. I am finally feeling like I have a handle on the insulin and I want to focus more on what she is eating and her exercise and things like that that I pray will make her healthy and live long. I am hoping to hear from anyone who has some wisdom to offer. Thanks.
    • Re: they mean well BUT

      Tue, April 3, 2007 - 12:23 PM
      For me counting carbs and learning my carb to insuline ration has been the key. I went from a A1C of 7.6 to 6.6. But I am also on the pump and love it to death, wish I had it in my teenage years. Then when everyone went out late at night for a snack I could of just bolused my pump instead of not giving anything.

      My co-works eat worse than I do and dont have diabetes, so they all pretty much keep their mouths shut.

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